Prader-Willi Syndrome Association of Ohio
		State Office 4075 West 226 Street Fairview Park, Ohio 44126 440-716-0552 email:  pwsaohio@aol.com

 Return to PWSA of OHIO Home Page

• Ohio Resources
• Other Prader-Willi Chapters
• Other Resources (updated 5/1/02)
  • Adult Issues
  • Behavior Issues
  • Bulk School/Craft Supplies
  • Catalogs & Equipment
  • Child Development and Growth
  • Communication/Language/Speech/Signing
  • Diet & Food
  • Email Support Groups
  • Education/IEPs/Teaching Ideas
  • Fun Stuff
  • Genetics
  • Growth Hormone
  • Health & Medical
  • Learning Styles
  • Rights of Children with Disabilities & Special Needs
  • Support Organizations



Adult Issues   

Resource for Independent Living	www.halftheplanet.com
North Coast Community Homes	a Cleveland-based nonprofit Organization that develops and maintains housing for persons with mental retardation, mental Illness and other disabilities www.ncch.org
Ohio Provider Resource Assoc.	residential programs www.medicalonline.com/disabled/residential/oh/
Social Security and Supplemental Security Income	www.ssa.gov
OH Department of Jobs and Family Services	www.state.oh.us/odjfs/ohpl0001programs.stm Lists Ohio Programs including Medicaid and Ohio Home Care Programs

Behavior Issues   

Applied Behavior Analysis (ABA) Resources	members.tripod.com~RSaffran/aba.html#principles
ABA Frequently Asked Questions	members.tripod.com/~RSaffran/faq.html#top
Anger Overload Article	www.ldonline.org/ld_indepth/behavior/anger_overlaod.html
Pediatric Association Parent Handouts	www.ambpeds.org/parentpatient.cfm
American Academy of Child and Adolescent Psychiatry	http://www.aacap.org/
Obsessive-Compulsive Foundation	http://www.ocfoundation.org/
National Academy for Child Development	http://www.nacd.org/
Tourette Syndrome	http://www.tourettesyndrome.net/
Depression in Children Article	http://www.undoingdepression.com/
10 Suggestions for Managing the Disruptive Behavior of Young Children during Testing Article	www.ldonline.org/ld_indepth/behavior/disruptive_behavior_in_testing.html
Touch Cue-Learning to use effectively	www.projectsalute.net/Learned/Learnedhtm/TouchCue.html

Bulk School/Craft Supplies   

Discount School Supplies and budget busters	http://www.earlychildhood.com/
Stickers, pencils, treat bag items, crafts, incentives, Band-aids	http://www.smilemakers.com/
Incentives, rewards, treat bag items	http://www.orientaltrading.com/

Catalogs & Equipment   

Great products for tactile defensive and SI therapy	http://www.abilitations.com/
Great products for adaptive feeding and bathing	http://www.onestepahead.com/
Special Needs Books	http://www.woodbinehouse.com/
Speech & Language Products	http://www.linguisystems.com/
Speech, Language and Hearing Products	http://www.superduperinc.com/
Therapy Products	http://www.wmmedicalsupply.com/
We sign ASL videos	http://www.production-associates.com/
Language Resource & Product Info.	http://www.hanen.org/

Child Development and Growth   

Child Health Links	www.childhealthinfo.com/links.htm
Growth & Development (Emotional/Language/Movement)	www.medem.com/MedLB/articleslb.cfm?sub_cat=105
Birth to Three	http://www.zerotothree.org/
Pediatrics & Adolescent Journal of Current Diagnosis & Treatment	www.medical-library.org/j_ped.htm
Pediatric Association Parent Handouts	www.ambpeds.org/parentpatient.cfm
National Academy for Child Development	http://www.nacd.org/

Communication/Language/Speech/Signing   

American Sign Language Browser	http://commtechlab.msu.edu/sites/aslweb/brower.htm
Language Development	Signing Language for pre-verbal infants and frustrated toddlers http://server2042.virtualave.net/momagen
We sign ASL videos	http://www.production-associates.com/
WeeTalk-Preschool Speech and Language (Canada)	http://www.weetalk.org/
Speech & Language Products	http://www.linguisystems.com/
Speech, Language and Hearing Products	http://www.superduperinc.com/
Language Resource & Product Info.	http://www.hanen.org/
Visual Language Dictionary	http://www.handspeak.com/
133 Page Communication Guide	www.hwdsb.on.ca/instructionalservices/support/.Hearing/GuidFull.pdf
Apraxia Kids	www.apraxia-kids.org/index.html
Birth to Five Language Stages	http://members.tripod.com/Caroline_Bowen/devel2.htm
Speech/Language Impairments	www.qscc.qld.edu.au/office/PDF/speech_language_impairment.pdf
Q & A on Speech Development	www.pirchei.co.il/specl_ed/down/archives/speech_dev.htm
Communicative Disorders Links	www.accessunlimited.com/links.html
Visual Strategies	http://www.usevisualstrategies.com/
Article: Early Childhood Developing Communication Abilities	www2.edc.org/NCIP/library/ec/Power_7.htm
Article: Developmental Verbal Apraxia or Apraxia of Speech	http://tayloredmktg.com/dyspraxia/das.html
Oral Motor Patterns Extensive Listing	www.beckmanoralmotor.com/patterns.htm
First Words Project	http://firstwords.fsu.edu/
Speech & Language Intervention Down Syndrome	www.denison.edu/dsq/kumin.shtml
National Cued Speech Assoc.	http://www.cuedspeech.org/
Cued Speech Mechanics	www.cuedspeech.org/mechanics.htm
Ohio Cued Speech Assoc.	http://www.cuedspeech.com/
Cued Speech Charts	http://cuedspeech.com/majors/CSpeech.htm
“Gaining Cued Speech Proficiency”	A manual for Parents/Teachers and Clinicians www.uri.edu/comm_service/cued_speech/
Auditory Neuropathy	Auditory & Communication Problems http://auditoryneuropathy.tripod.com/ANindex.html
Article:  Cued Speech	http://auditoryneuropathy.tripod.com/cuedspeech.html

Diet & Food   

5000 Calorie Thanksgiving Dinner	www.come-over.to/PWSAA/TG/tgtable.htm
American Dietetic Association	http://www.eatright.org/
Click on Recipes	http://www.diabetic-lifestyle.com/
The Cook’s Thesaurus for Substitutions/Planning Meals	http://www.switcheroo.com/
Checkbook size product for daily Nutrition Calculator/Record Keeper	http://www.nutricounter.com/

Email Support Groups   

PWSA-USA E-Mail Support Groups	Ages: Birth to Five Years Old, Six to Twelve years Old, and Teens www.pwsausa.org/emaillist.htm
PositivelyPWS Group	http://groups.yahoo.com/group/PositivelyPWS/
Prader-Willi Group (Also known as “Onelist” or “Velma’s Group”)	http://groups.yahoo.com/Prader-Willi/
PWS Holistic	http://groups.yahoo.com/PWSHolistic/

Education/IEPs/Teaching Ideas   

Ohio School’s Report Cards	www.ode.state.oh.us/reportcard
Parents guide to helping kids with learning differences	http://schwablearning.org/
Learning Disabilities	http://www.ldonline.org/
Parent Pals	Special Ed. Teaching Games (4 Levels) http://www.parentpals.com/
Lesson Plans	http://www.do2learn.com/ http://www.sitesforteachers.com/
Lesson Planning Center	http://www.teachervision.com/
Writing Skills and Lesson Plans	www.fonts4teachers.com/index.htm
Classroom Strategies	www.fno.org/toolbox.html
Teaching Resources	http://www.scholastic.com/
Community and Local Ed. Site	http://www.myschoolonline.com/
FREE Federal Resources for Academic Excellence	www.ed.gov/free
Council for Exceptional Children	http://www.cec.sped.org/
Resource Links	www.schoolnet.com/resource/parent
Learning/Teaching Materials	http://www.lakeshorelearning.com/
Learning Network	http://www.familyeducation.com/
Speech & Language Intervention Down Syndrome	www.denison.edu/dsq/kumin.shtml
Article:  10 Suggestions for Managing the Disruptive Behavior of Young Children during Testing	www.ldonline.org/ld_indepth/behavior/disruptive_behavior_in_testing.html
Touch Cue-Learning to use effectively	www.projectsalute.net/Learned/Learnedhtm/TouchCue.html

Fun Stuff   

PWS fun Kids page from Arizona PWS Association	www.come-over.to/MissSilli
Interactive stories (English & Spanish)	http://www.storyplace.org/
Parent Pals	Interactive Teaching Games http://www.parentpals.com/
Clifford, Barney, Dragon Tales, Between the Lions, Zaboomafoo	http://www.pbskids.org/
Bear in the Big Blue House, PB & J Otter, Book of Pooh, Rollie Pollie, Ollie	http://disney.go.com/park/bases/playhousebase/today/flash/index.html
Other fun sites for kids	http://www.123child.com/ http://www.childfun.com/ http://www.enchantedlearning.com/ http://www.kidsdomain.com/ http://www.kinderart.com/ http://www.pappyland.com/ http://www.thecrayonhouse.com/

Genetics   

National Institutes of Health Office of Biotechnology	www.nih.gov/od/oba/
National Center for Biotechnology Information	http://www.ncbi.nlm.nih.gov/ Click on PubMed for articles
Hormones & the Hypothalamus	www.ultranet.com/~jkimball/BiologyPages/H/Hypothalamus.html
Chromosome 13-16	www.ncbi.nlm.nih.gov/disease/chr13-16.html
Prader-Willi Syndrome	www.ncbi.nlm.nih.gov/disease/prader.html
List of Chromosome Disorders	www.netnet.net/mums/mum_chro.htm
Genetics & Rare Conditions List	www.kumc.edu/gec/support/
National Organizations for Rare Disorders (NORD)	http://www.rarediseases.org/

Growth Hormone   

CDC Growth Charts	www.babysdoc.com/new_growth_charts.htm
Children with GH Deficiencies	http://www.magicfoundation.org/
American Association of Clinical Endocrinologists	http://www.aace.com/
Metric Conversions for Weight & Length	www.convert-me.com/en/
Search Growth Hormone	http://hsc.virginia.edu/cgi-local/texis/webinator/indexes/search?db=full-site
Pharmacia	http://www.pharmacia.com/

Health & Medical   

CDC Growth Charts	www.babysdoc.com/new_growth_charts.htm
FDA Drug Approvals	www.fda.gov/cder/da/da.htm
Gastrostomy Support	http://www.g-tube.com/
Hormones & the Hypothalamus	www.ultranet.com/~jkimball/BiologyPages/H/Hypothalamus.html
Immunization Program	www.cdc.gov/nip/
National Osteoporosis Foundation	http://store.yahoo.com/nof
Orthotics	http://www.orthoseek.com/ Click on Topics
SI International-The Ayres Clinic	http://www.sensoryint.com/
SI Network Resource Center	http://www.sinetwork.org/
Swimsuits & Undergarments	http://www.aquaforce.com/
National Association of School Psychologists	www.nasponline.org/index2.html
American Academy of Child and Psychiatry Adolescent	http://www.aacap.org/ Offers “Fact Sheets for Families” in English, Spanish, French, German
Pediatric Association Parent Handouts	www.ambpeds.org/parentpatient.cfm
Obsessive-Compulsive Foundation	http://www.ocfoundation.org/
National Academy for Child Development	http://www.nacd.org/
Tourette Syndrome	http://www.tourettesyndrome.net/
United Mitochondrial Foundation	http://www.umdf.org/

Learning Styles   

All Kinds of Minds	http://www.allkindsofminds.org/
Cognitive & Developmental Disabilities Resources	www.waisman.wisc.edu/www/mrsites.html
Diagnosing Dyslexia	www.proactiveparent.com/specialnews.htm
Dyslexia Information	www.dyslexia-information.com/index.html
Types of Learning Disabilities	www.medem.com/MedLB/articleslb.cfm?sub_cat=547
Auditory Neuropathy Homepage	http://auditoryneuropathy.tripod.com/ANindex.html

Rights of Children with Disabilities & Special Needs   

IEP & School Issues	http://www.wrightslaw.com/
Families & Advocates Partnership for Education	http://www.fape.org/
Click on PAW Publications   Click on Special Education	http://www.pai-ca.org/ (Cal.ED=California Laws, the rest are Federal Laws)
U.S. Dept.-Office of Special Education program (OSEP)	www.ed.gov/offices/OSERS/OSEP
U.S. Dept. of Education Publications	www.ed.gov/pubs/edpubs.html Most Items are Free Excellent Publication is the “Guide to the Individualized Educational Program: July 2000
Parent Advocacy Coalition for Educational Rights	http://www.pacer.org/
Special Education Laws	http://www.edlaw.net/
Office for Civil Rights	www.ed.gov/offices/OCR
U.S. House of Representatives	http://www.house.gov/

Support Organizations   

Ohio Coalition for the Education of Children with Disabilities (OCECD)	www.taalliance.org/ptis/regohio/tpubs.htm
Obsessive-Compulsive Foundation	http://www.ocfoundation.org/
The Administration for Children & Families/U.S. Dept.of Health and Human Services	http://www.acf.dhhs.gov/
Formally “Association for Retarded Citizens” Ohio	http://www.thearcofohio.org/
USA ARC Website	http://www.thearc.org/
United Mitochondrial Foundation	http://www.umdf.org/
Disabilities Studies & Services Center	http://www.dssc.org/
Internet Resources for Special Children	www.irsc.org:8080/irsc/irscmain.nsf Go to the Disabilities Links
National Academy for Child Development	www.nacd.org/articles.html
National Early Childhood Technical Assistance Center - From U.S. Dept. of Ed.	http://www.nectas.unc.edu/
National Information Center for Children & Youth with Disabilities	http://www.nichcy.org/
National PTA	http://www.pta.org/
Office for Civil Rights	www.ed.gov/offices/OCR
Parent Advocacy Coalition for Educational Rights	http://www.pacer.org/
Special Education Newsletter	http://www.specialednews.com/
U.S. House of Representatives	http://www.house.gov/
“From Emotions to Advocacy”	http://www.fetaweb.com/ Companion site to Wrightslaw.  Book to help teach advocacy skills
National Organization for Rare Disorders	http://www.rarediseases.org/